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Dylan and other CF patients carry hope for longer, healthier lives

Patients

dylan

When Dylan was a baby, his parents worried that something was wrong with his health. He was frequently coughing and was not growing at a normal rate. At 3 years old, Dylan contracted pneumonia and was treated at Children’s Hospital Colorado. When doctors tested him, Dylan’s parents finally found out what was wrong – Dylan had cystic fibrosis (CF).

CF is a life-threatening illness that causes mucus to build up in the lungs, creating breathing and digestion problems including serious lung infections. There is currently no cure. Once diagnosed, Dylan’s treatment included many pills and antibiotics to aid in his digestion, as well as wearing a vest that would shake mucus loose from his lungs.

"Hope in a pill"

Yet Dylan's family found new hope at Children's Colorado. As host to one the largest cystic fibrosis treatment centers in the country, Children’s Colorado and Dr. Frank Accurso helped lead a major breakthrough in the treatment of CF with a drug called Kalydeco - the first drug to treat an underlying cause of certain types of CF. On Jan. 31, 2013, the US Food and Drug Administration approved the drug for use.

Dylan is currently being treated with Kalydeco, and the improvement in his health has been vast. “It’s like hope in a pill,” his mother said. “Words can’t really describe how life-changing it was for us.”

After nearly a year of treatment with Kalydeco, Dylan no longer has to wear his vest and he continues to grow. Today, Dylan enjoys reading, drawing, riding his bike and playing with his dog.

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